Rare kidney disease (RKD) touches thousands of lives across the globe every day. NephCure is shaping the future of RKD by empowering patients to take charge of their health, while leading the revolution in research, new treatments, and care.

Children with nephrotic syndrome may face a range of emotional challenges related to the illness and its treatment. These challenges can affect their mood, behavior, and overall mental health.

Watch this video for a detailed explanation and demonstration of how to test your urine for protein and other things to monitor at home. 

NephCure Kidney International aims to accelerate research for effective treatments for kidney diseases, and to provide education and support for patients and their families.

PEDSNet is a large, national community of hospitals, researchers, clinicians, patients, and families working together to identify the most important research questions to improve children's health and well-being.

IROC is a network-based learning health system of patients and families, clinicians, and researchers from the most advanced pediatric institutions in the country.