The Glomerular Learning Network (GLEAN) is a collaborative of nine pediatric institutions, established with the mission to improve the health and well-being of children with glomerular disease through implementation of clinical quality improvement and clinical research. Specifically, GLEAN strives to increase disease remission and decrease disease complications for children with glomerular kidney conditions.
GLEAN has several ongoing initiatives, one being quality improvement (QI) efforts to improve pneumococcal and influenza vaccination rates for children with nephrotic syndrome. The network’s QI workgroup meets monthly.
Other ongoing initiatives within the network include reducing acute care utilization and standardizing disease definitions, data capture, and treatment plans for children with NS. The network leverages PEDSnet’s validated computable phenotype which identifies children with glomerular disease. GLEAN has developed nephrotic syndrome Smartforms and an EHR registry report to standardize data capture across the network. Standard data capture will inform QI and research efforts by establishing consistent measurements. Future QI efforts will include preventive care, screening for treatment-related side effects, and monitoring treatment effectiveness in children with nephrotic syndrome.
Purpose
To improve the health and well-being of children with glomerular disease.
Network mission
To improve the health and well-being of children with glomerular disease by conducting and integrating multi-institutional research and quality improvement that helps children, families and health professionals make better health and healthcare decisions.
